living your best to the end

Zal Press: Mr Patient Commando – Who’s important?

Guest blogger, Zal Press, created Patient Commando to give patients’ stories a ‘voice’. Pictured here in his ‘teach about Crohn’s’ lab coat, he shares his thoughts on ont of Best Endings topics: Who’s important to you? Who’s important in my end-of-life plan? Contemplating that question, it took me a moment to realize that “I’m important!” Taking Inventory of Who I Am It starts here, similar in some respects to a computer chip, the intelligence that powers the organism, I am: 61 years old, orphan son Living with Crohn’s disease for 30+ years, with multiple surgeries, treatments, medications Husband of 32 years in a loving relationship (more on this later) Parent of 2 young adults who are compassionate, thoughtful, open minded critical thinkers. Who are my ‘important’ extended family relationships? I’m a younger brother (yes at 61) he and his wife are present in my life. I’m a cousin to people who are important to me. Some of these relationships play major continuing roles that are vital to my existence. I’ve got in-law status. I’m an adopted member of an Israeli family. I’m going to have to determine what guidance I’ll have to give them so they’ll feel comfortable with themselves about my situation. Beyond blood: Chronic illness is a team sport. As a Crohn’s disease patient, I have several team members. While I may be the Captain of my Team, for over 30 years I’ve relied on someone in particular who’s played many important roles. It’s no secret that my wife, Cec, has been on this trip with me for decades. She’s managed my life and my kids when...