living your best to the end

Dementia and Alzheimer’s Patients share hope and humour

“I’m 62. I was diagnosed at 46. You do the math” Christine Bryden, Person with Dementia 16 years of living with Alzheimer’s and Christine Bryden’s making the audience of 300 laugh and cry at A Changing Melody: A learning and sharing forum for persons with Early Stage Dementia and their partners in care. No surprise that Alzheimer’s is the second most feared disease (Cancer being #1). What I learned from the Forum helped put that fear into more practical perspective.   On overcoming fear and stigma: Fear of what others may think often prevents getting diagnosis. Get in early and get help early! Your life has meaning. Focus on relationships based on love and connectedness. Don’t let fear mask your worth. Reach out over the barrier of stigma to help overcome fears. (author’s note: doesn’t that apply to many health issues?) (An example from an audience member) “I talk to people in airplanes about having dementia. At first, they simply don’t believe it.”  (love it: educating a captive audience) From Mary McKinley, Canada (who organizes social events at retirement home, she uses an online journal set up by her son.) “Feeling is, we with dementia have no insight. That is so wrong! I have to use drugs to help deal with anxiety in others. Noise and sound are amplified. Multiple conversations are  really hard. Part of my brain that controls anxiety has no sense of proportion; Key words are: SLOW DOWN! The processor in my brain is struggling. When I need I quiet time, hiding out in the bathroom is a solution. However, my brain doesn’t send ‘bathroom’ signals....